Thursday, February 28, 2008

Fire Department Field Trip

Today we went on a field trip with other homeschoolers to the fire department. The kids had such a great time. The highlight of the day was spraying the hose. And since we were all headed home, they got to get soaked. The picture of Collin and Zachy I took while they were waiting for their turn to spray the hose. The wind would blow the water towards us, and I kept seeing them huddled together to stay dry. It didn't last long. All four of them were soaked by the time we left.
They also thought the fire truck was pretty cool. Everyone told me they want to be firemen now. Except for Collin, he wants to be a cowboy!









Tuesday, February 26, 2008

Fear

Today, as Emmie was sitting at Matthew's feet, bobbing up and down with her arms in the air, signalling him to pick her up, I was reminded of something.
After Zachy was born, we would ask the kids if they ever wanted another baby. Matthew's response was always a very hesitant yes. We would ask him why he hesitated, and he would tell us that he very much would like another baby in the family, but that he was afraid that the baby would be sick like Zachy.
And we were too. We let that fear grip us for quite awhile.
But then, I fell pregnant. And I was very frightened. I think people assume that we went into another baby completely lighthearted and carefree. In reality, nothing could have been further from the truth. We saw all the specialists I was supposed to see, and still, we were afraid. When I first went to the doctor, I was asked if I wanted to abort. Why? Because she was my fifth? I don't think so. When I first went in, I was a wreck. I told the doctor I was terrified, and wasn't sure if I was able to do this. But I never meant I wanted to abort. I had faith that no matter what was to be, God would carry us through. But still, I was afraid. I was afraid that I wouldn't like what it was God was about to carry us through. I was afraid that our lives would forever be changed. I was afraid our baby would die. I was afraid of seeing another baby in pain. I wasn't sure I could handle open heart surgery again, and I knew it wasn't the worst thing possible. I was afraid.
And I was afraid all throughout my pregnancy. You may remember me touring all the hospitals. All I was looking for was the NICU. How well they were equipped to handle my baby. It was something I could control, where this baby would be born.
And then she was born. All pink and perfect. All I said when she was born was, "she's pink" over and over. I sobbed. She was pink. And she cried. And suddenly, all was right in the world.
And then she was taken to the NICU because her breathing was labored. And everything they were telling me about her, was the same thing they had told me about Zachy. And I was afraid.
And now, in less than one week, that perfect pink baby, will be one year old. And she is perfect.
And I was watching how deeply she loves Matthew, and how deeply he loves her, and I was hit with this thought...you cannot let fear rule your life. If you do, you will miss out on some very wonderful things, and people.
I can't imagine life without our Emmie. And I know Matthew can't either. And had we let our fear run our lives, we wouldn't have her.
I need to learn to forever been leaning on the everlasting arms of my Lord. And then, the fear won't be there. I think I always try to take it back. I need to just give it. Because He always takes care of us. Even if something horrible had happened, He would carry us through.

Monday, February 25, 2008

Guess what this weekend is

Go on..guess...THE PHANTOM OF THE OPERA!!
Oh my, I'm so excited.
My dad took me when I was in high school, and I really don't know how the traveling show will compare to the one we saw in LA, but I'm still really excited to be sharing it with Matt.

Sunday, February 24, 2008

I have no idea what to title this post!

Zachary had an appointment with his electrophysiologist this past Wednesday. I meant to get on and post about it, but I woke up with mastitis Wednesday morning. By the time we got home my fever was climbing higher and higher. My whole body ached, even the joints in my toes ached. I was pretty miserable.
And trying to get into a doctor around here is really difficult. So, I started on some old antibiotics and hoped it wouldn't get worse.
By Thursday night my temp had climbed to 103 and I couldn't get it down. I also couldn't unplug the duct that was giving me all the problems. Matt said I needed to go to the ER, but there was no way I could drive there. I was so weak.
I tossed and turned all night and was just sweating through my jammies.
When I awoke, my temp was finally down. But I still hurt horribly. So I tried calling again for an appointment. I got the run around. Finally, I was given the number to OB triage, which is where the lactation consultant is. They told me to get to the ER.
I was able to leave all the kids with Matt in the afternoon, and finally get to the ER. They did an ultra sound and said the duct was NOT abcsessed, which is what I was afraid of because it wouldn't drain. That was great news. She started me on a stronger antibiotic with instructions to come back in 24 hours if I wasn't better.
After just one dose I was feeling so much better. I'm still sore, and my temp still goes to about 100 throughout the day, but there is improvement. YAY!
It was horrible and I wouldn't wish it on anyone.
So all of that to say that I didn't update about Zachy.
He's looking good. The pacemaker is working 95% of the time. Holy smokes that's alot. The doctor says he will lower the threshold at about 6 months in order to get the battery to last longer. How that will work is really too complicated to try to explain here, but it will actually be allowing one of his natural pacemakers to pick up some of the slack.
In a few weeks we get to use a machine that will send all the pacing info to the doctor over the phone. Zachy is super excited about this, and carried the machine around for days when it came in the mail.
Yesterday, was pathfinder and adventurer sabbath. Our kids all worked really hard and did such a great job. We were so proud of all of them. And when I say that, I'm not talkig about our 5 kids, but all the kids. We direct the club, so they're our kids!
Soon we will be moving onto planning VBS. Oh the fun never ends here!!

Sunday, February 17, 2008

The story about Matthew

I promised you a story about Matthew!
So without further ado.....
Thursday night, the youth of our church had a dinner for the couples. It was a fundraiser and the kids were the servers and hostesses.
Several kids were assigned more than one table.
Matthew, however, was assigned one.
When I looked in, I saw that he was assigned to Sandra's table.
Sandra is an elderly lady, who is nearly blind.
I think she tries to appear not so blind at church, because she will open the hymn book and hold it right up to her face. But Matt has seen it upside down on more than one occasion.
Matthew told me afterwards that he only had her table, and that he helped her read the menu, and when he brought her the food, he told her where on her plate different items were.
Then he said, "when I first was assigned to her, I thought, "oh no, why her??" but then I realized that she was really, really nice"
Now you have to understand that Matthew is pretty shy. And I was concerned about him getting her table. I wasn't sure how he would be able to handle it, because she is a talker too.
When he said that, I was so proud. I told him that I thought God had put him with Sandra on purpose, because none of the other kids could understand what it was like to have no vision. I imagine her vision is as good as Matthew's bad eye. And he was able to empathize with her.
I'm not sure many of the other kids would have had the compassion to read to her and help her out like he did. And he ended up learning such a valuable lesson.
He makes me so proud.

Saturday, February 16, 2008

Have I mentioned?

Have I mentioned that Emily is walking all over the place? Sure, she still falls, and thinks that crawling is much better. But she is indeed walking. How can this be? The boys all were at least a year old, with Matthew being the earliest walker. He took his first steps on his birthday.
The horrible thing is, I cannot remember what day she started. How can I record something I don't remember? Maybe I'll just fudge it in the baby book. I'll forget by next year anyway!
I have a great story to tell you about Matthew, but it will have to wait until a decent hour. It's midnight here, and I need to get to bed to be up for church in the morning.

Friday, February 15, 2008

Trees

I love the trees in Texas. Especially this time of year. I don't particularly care for them when they have leaves because the leaves are all really puny. But at this time, I love them. I think they have such character. All bendy and knobby. They all seem like halloween trees, if halloween had trees. No, they aren't the pine trees I'm so used to, but they have a uniqueness all their own.
Usually, these trees are just full of Grackles, and I have really come to enjoy their calls, as well.
Matt thinks I'm nuts for liking the sound of these birds, they sound a bit like crows, only not. And I'm sure he'll also think I'm crazy for dedicating an entire entry to the trees.
They are just so beautiful.



Thursday, February 14, 2008

Just the facts please

Today is Congenital Heart Defect awareness day. Here are some facts you need to know.

~~1 in 85 babies in the US will be born with a CHD. This does NOT include the babies who are lost during pregnancy.

~~CHDs are the most common type of birth defect, and the #1 cause of DEATH from a birth defect

~~CHDS are 2 times as likely and kill 2 times as many children as cancer EVERY YEAR

~~ There are 35 known types of CHDs

~~Most Drs believe that CHD is a genetic defect, but new research shows that mothers who take antidepressants and painkillers while pregnant raise the risk of CHD by 3 times.

~~Many children born with a CHD will not live to see their first birthday

~~CHDs are not always found at birth. Some are found years later. And sometimes after death, when it is too late.

~~CHD can NOT be cured. The heart will NEVER be normal. It must be treated for life.

~~Only one penny of every dollar donated to the American Heart Association goes towards pediatric cardiology research.

So many people do not know about CHDs...it doesn't make the news like cancer does. Why is this? The word needs to get out so that research can be done. Zachy's surgery has only been performed for about 40 years. So much can happen in the future, but research needs to be done!!

Hug your children today, and thank God for their hearts...even if they are special hearts.

Wednesday, February 13, 2008

Poem

You passed me in the shopping mall..(You read my faded tee)
You tapped me on the shoulder...Then asked....."What' a a CHD?"
I could quote terminology. ..There's stats that I could give...
But I would rather share with you...A mother's perspective.
What is it like to have a child with a CHD?
It's Lasix,aspirin, Captopril. ...
It's wondering... Lord what's your will?...
It's monitors and oxygen tanks...
It's a constant reminder...to always give thanks...
It's feeding tubes, calories, needed weight gain...
It's the drama of eating...and yes it's insane!
It's the first time I held him...(I'd waited so long)
It's knowing that I need...to help him grow strong...
It's making a hospital...home for awhile...
It's seeing my reward...in every smile.
It's checking his sats...as the feeding pump's beeping...
It's knowing that there... is just no time for sleeping...
It's caths,x-ays and boo boos to kiss...
It's normalcy...I sometimes miss...
It's asking...do his nails look blue?
It's cringing inside... at what he's been through.
It's dozens of call to his pediatrician. ..
She knows me by name...I'm a mom on a mission)
It's winter's homebound... and hand sanitizer...
It's knowing this journey...has made me much wiser.
It's surgery day...and I'll never be ready.
It's handing him over...( I'm still not prepared...)
It's knowing that his heart... must be repaired...
It's waiting for news...on that long stressful day...
It's ...praying.. .it's hoping...that he'll be okay.
It's the wonderful friends... with whom I've connected...
It's the bond that we share...it was so unexpected.. .
It's that long faded scar... down my child's small chest...
It's touching it gently...and knowing we're blessed...
It's watching him chasing...a small butterfly...
It's the moment I realized...I' ve stopped asking...why?
It's the snowflakes that fall...on a cold winter's day...
They remind me of those...who aren't with us today)
It's a brave little boy...who loved Thomas the train...
Or a special heart bear...or a frog in the rain....
It's the need to remember...we are all in this plight....
It's their lives that remind us... we still need to fight!
It's in pushing ahead amidst every sorrow...
It is finding the strength to have hope for tomorrow.
And no...we'll never be the same...
It's changed our family...
This is what we face each day...
This is...a CHD.

~~Stephanie Husted.....

Friday, February 8, 2008

Zach's heart

I've been wanting to share pictures here..but I am having a hard time getting to them. So instead, I will do this.

In honor of this
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I'll tell you about Z's heart.

This is a normal heart..




And this is how Z's was at birth.



He also had one of these

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It's really hard to tell on these pictures, but his pulmonary veins were connected to his superior vena cava instead of to his heart. The superior vena cava is the vein that his pacemaker leads are now through. Doing the surgery on that vein, is what caused it to be narrow and what caused all the problems during this last surgery.

You can see that the atrial septal defect repair would be in the right atrium. Unfortunately, this is where the sinus node is as well. The sinus node is what tells your heart to beat. The repair of the ASD is what caused the damage to the sinus node in the first place. And all the scarring from the repair is what caused it to be so hard to place the leads in the atrium.

There, now you know a bit more about Zachy's miraculous heart.

Thursday, January 31, 2008

Could y'all pray for me?

There are people in my life that I very much need to forgive.
But, quite frankly, I am hating them right now.
I know this is awful. Hate is as bad a murder...but still...I have this hatred. And I hate that I have this hatred.
The only way I know how to deal with this is through prayer. I honestly have no other ideas. I don't want to hate these individuals. I really don't. But I don't know how to take it away. I don't know how to forgive them for the pain they have inflicted on me. And not to just say it. To really mean it. Because honestly, I've said many times over the years that I forgive these people, but I must not, because I still have the hatred.
So please, just pray for me, that I might overcome these feelings, and be able to truly forgive.

Tuesday, January 29, 2008

Spinning my wheels

Today is one of those days.
One of those days where I feel like I'm working and working, yet nothing seems to be getting done.
I need a maid.

Just to clarify

In my last post, I wrote that what my sister was going through was killing us.
I want to clarify, and say that we are so optimistic about how this will all turn out. What is killing us is what my sister and brother in law are going through. We know, to some degree, what they are going through. And it is something you wouldn't wish on your worst enemy. I can't pretend to know exactly what they're going through, because everyone deals differently with things, but I know the jist. And it stinks.
I just wanted you all to know, that we really are very optimistic about the outcome of all of this, it is just this in between time that is hard.

Monday, January 28, 2008

As my sister says...

Life's hard...eat ice cream.

Boy is she right.

A kid at our old church, who isn't really a kid anymore, was in a serious car accident two nights ago. Serious brain injuries. Matt and I are sick over it. We have always said, 'if our kids turn out as good as their kids, we will have done well' And it's so true. Such a good good family. Please say a little prayer for them.

And my sister is going through some really rough stuff. I don't think I'm a liberty to talk about it here, but dang..it is really rough. And it's something that is also killing Matt and myself.

A lady on my heart list just lost her son. Totally unexpectedly. So sad.

Bad things happening all around.

BUT...in good news..Zachy seems to be doing well. Except the last couple days he's been really pale and pretty tired. If it keeps up, I will probably call the doctor. I don't know how long it takes to recover from an 8 hour surgery. But he was doing pretty well, and then whammy...exhaustion and pale pale paleness. Hopefully, he'll be all bettr tomorrow.

Emmie has her fifth tooth. She sure is a slow teether. And she is now standing in the middle of the room, and has taken two steps. It's all downhill from here!

I'm trying to lose weight, so I'm not going to go get ice cream, but we are definitely trying to celebrate the little things. For instance, tonight we all blew bubbles at Dillon because he FINALLY spelled could, should and would correctly.

We must celebrate the little things, because they may be all we have. So, go get some ice cream, and find something to celebrate...even if it is just making it through the day.

Sunday, January 27, 2008

Post op appointment

Matthew and Dillon are at a birthday party. Matt is watching Scooby Doo with Zachy and Collin, and Emmie is sitting here happily chewing on a lid. So, instead of doing some much needed cleaning, I'm stealing a few moments to talk about Zachy's appiontment on Friday.

It was all very interesting. His regular cardiologist saw us in the hall so he came in to talk to us about things. He asked if we'd seen any difference. I told him that I hadn't, other than not being able to see his pulse. He told me that this was totally normal, and that he would expect it to take up to six months to see an increase in energy. I explained to him that I was having such a hard time wrapping my head around things. I mean, I get that his heart is beating more efficiently, but it just seems like he would tire out just from it beating so much faster. He told me some specific things about the workings of the heart, and explained that Zach had been running on about 30% less blood flow than normal. And that now his heart is beating at an acceptable rate, where as before it was not. But he said that his body has been running on this decreased blood flow for so long that it would take awhile for it to figure out what was happening, and adjust it's energy levels and whatnot.
Then the pacemaker doc came in and talked with us about the pacemaker. Right now it is set to go if his rate drops below 80 bpm. Which is basically, all the time. In three weeks, we will see him again and he will lower this threshold. Our hearts have several of their own pacemakers. And his has been running on a back up pacemaker for a long time. He said he isn't going to totally prevent that, because that part of his heart has been working for so long that way. And if he did totally prevent it, we would be lucky to get the battery to last 3 years. For now, we are going to try to get the battery to last at least 5 years. But his heart is so slow, that we might not make 5 years. Talk about depressing! But that's the goal.
Friday, we received the machine that will transmit the pacemaker info via the phone line. Zachy was pretty excited about it. Of course, it will be quite awhile before we use it, because we'll be seeing the doctor routinely for several months.
He also told us that where the vein was narrowed, was where his pulmonary veins were initially connected, so that is why it was narrow.
And through all of this, we are thinking that Zachy has a nickel allergy. He has had several reactions to metal in the past. Where the metal was on the pulse ox is still a sore on his thumb.
Anyway, things look good. And things are more clear now. It's all so much to take in. I imagine over the course of the next appointments they will become even more clear.
I'm just really glad to have this behind us now. Zachy acts like he never even had surgery. Kids are so amazing, they bounce back so quickly.

Tuesday, January 22, 2008

So very strange

Last night, Emmie wanted nothing to do with me. She would go to Matthew and cry for him to pick him up. Once, Matthew came and sat by me, and she climbed far over on his lap.
Then, Matt had her. Same thing. No matter what I tried, she would climb up on Matt to get away from me.
Finally, Matt said, "she's acting like she doesn't know you"
It then occurred to me that my hair was in a pony tail. So I took it down.
She immediately started cuddling with me, with huge smiles. It was like she was saying, "I missed you so much". It was really quite odd.
I put it back up later, and she got a bit leery again. Once I took it down, she was all smiles again.
Silly girl!

Toothless

Matthew had 7 teeth pulled this morning. He now has one molar on the top, and his front 10 teeth. Poor thing.
They said it took longer to get him to sleep than to get the teeth out. He's doing well now, but keeps complaining about the taste of the gas in his mouth.
Glad that is over with!

Monday, January 21, 2008

grr

Those pictures were too big. So here they are. The descriptions are in the post below. Sorry.

Pictures

I'm happy to say that Zachy is doing great. I've also noticed that I can no longer see his pulse pulsing in his neck. It used to be that I could see it from several feet away. His heart must be working pretty efficiently. I did feel his pulse, and it was so wierd...I had a hard time finding it. And then, it was pretty fast. I didn't count it since I know it isn't below 80, but it just felt really wierd. HOORAY!!
Anyway, here are some pictures from the surgery.

Waiting to have vitals taken.

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Here we are in the pre op area. It was actually in the cath lab, and we were the only ones there. As a result, they allowed all the boys and grandparents back with him to give hugs and kisses. It was nice. They also didn't change him out of his clothes and into a gown until he was on the bed and out.
He had just had versed and was starting to relax a little.
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And now the versed has kicked in and he is really silly.

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Waiting in the waiting room, for 8 long, long hours.

Matthew
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Dillon
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Collin with grandma and grandpa
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Grandma
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Emmie
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Finally done and in his room.
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Day after surgery
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Collin helping entertain him.
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On these pictures, you can see white marks amongst the green. The white is everytime the pacemaker strikes. He would go several minutes with no strikes, then several with them.
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Incision is on the left pec.
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Playing in the playroom on Thursday.

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Picture Matthew drew for him, of him. The pacemaker is down below his heart.
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Watching TV in a wagon. We had taken a ride around the ward, and he decided he needed to stay in the wagon.

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Bandages covering the pressure marks on his back. They were very sore red marks across his upper back. It was what he complained about more than anything. I'm happy to say they are almost gone now. And I don't know why I don't have pictures of the marks. Other than the fact that he would scream anytime we got near his back.

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Visits from everyone
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And finally, he got to come home. His mood suddenly changed and he started singing songs.
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Friday, January 18, 2008

Zachy is home!

Whew, what a couple of days this has been.
Zachy's surgery was scheduled for Wednesday at 10:30. We arrived at the hospital at 9 am. While we were working on all the vitals and whatnot, the doc came in to talk to us. We talked about all the risks and whatnot. He told me he didn't expect any complications and that it should be pretty straight forward. He figured it would take 2-3 hours from start to finish.
We then moved upstairs to the cath lab, and they gave him some versed. He had been totally silent before the versed kicked in. Finally, he started smiling. As soon as the versed kicked in, they took us to the lab where they would do the surgery. They put the mask on him to gas him down, and he started laughing. It was so funny. Matthew has always fought the gas mask, but Zachy just laughed and laughed. He had the hiccoughs from laughing so much. Finally, he was asleep and we kissed him goodbye.
The plan was to get an IV in and shoot contrast up his arm to make sure his veins were open enough to get the leads in. After a bit, the doc came out to tell us that the veins were indeed wide open and he would proceed with the surgery as planned.
The next update was from a nurse who told us he was making the pocket in his chest where the generator would be placed.
I don't know how much time went by, but the next update was from the doctor. He came out with an x-ray to show us what was going on. He had been having a hard time getting the leads through his veins and couldn't figure out why. So he decided to do a heart cath and find out why out. He tried in his right leg, but for some reason was unable to get anything in that vein. It's a mystery why that artery is so small. But after that he went to his left leg and was able to go in that way. Once up there, he was able to see that while the veins were wide out far from his heart, closer in it was very narrow. He told us he had called in another doctor to decide if they should just balloon up the vein and leave it, or balloon it and place a stent to hold it open. The concern was that if they ballooned it and didn't put a stent in, then the vein would eventually collapse around the lead over time. My understanding is that this wouldn't be a big deal, but they would like to avoid that.
We waiting for probably an hour for the other doc to get there. We saw her come in, and it wasn't long before she came back out. The two of them told us they decided the best thing to do would be to place a stent, so we agreed to that. They told us one of the risks would be the stent being pushed out of place, but they said there was a very small risk of that, like 2%. So we consented to that part of the surgery.
The next update came when the second doc came out and told us the stent was in place and the first doc would be proceeding as planned. PHEW!!
Time went by, and I told Matt something must have gone wrong, because it was taking too long.
The second doc came back out to let us know that while they were feeding the lead through, the stent was pushed out of place. They decided to pull it down to his leg so that if he needs another heart cath, they will have a place to get at.
It wasn't too long after that that a nurse came to tell us he had been able to get the leads across the narrow vein. It wouldn't be long now.
But that wasn't the case. Again, I told Matt that something was wrong and it was taking too long.
Finally, the nurse came and said the doctor was closing up.
When he came out to talk to us he told us that due to all the scar tissue in his right atria it was very hard to place the lead. It finally got placed though, and they were done.
A 2-3 hour surgery ended up taking 8 hours. My poor baby. He went through so much.
Since then he has done really well. He stayed in the hospital about 48 hours to get IV antibiotics. But has really done great pain wise. The thing that bothers him the most is his back. He has red marks on his back from being on the table so long. And they are very sensitive. That's all that he really complains about. Right now, he is telling me his armpit is hurting, so he's had some tylenol.
Matt was able to stay with him both nights at the hospital.
While in the hospital they had his monitor showing when the pacemaker would go off. It was really interesting to watch. He would go for several minutes just fine. Then he would be paced for several minutes. They have it set for if his rate falls below 80 beats per minute.
We go back to the doctor next week, but for now he is comfortable at home.
Thank you for all your prayers. It was hairy, but the end result is good.

Tuesday, January 15, 2008

Already

Tomorrow's the big day.
I've been really preoccupied this week. But that stress has now subsided...and I'm so not ready for this.
simple procedure....simple procedure....simple procedure.... But still...he's my baby...and this involves his heart...and wel...he's my baby.
Pray for us.

Friday, January 11, 2008

Would you believe it..I'm still alive!

It's occured to me that sometimes when I'm stressed, or worried, I just don't function well.
I mean, I do in my day to day life, but to do extra, like blog, forget it.
Zachy's surgery is approaching at such a rapid speed, it's making my head spin.
My mom is here, and Matt's parents will be here tomorrow.
Zachy is so looking forward to going to the hospital. He knows there will be goodies for him. He also knows that he will go to sleep, and that he will get good medicine to help him not hurt. But dang, it's still so hard. I hurt just thinking of him going under.
It's so hard. I hate seeing my kids hurt. As any mother would. *Sigh*
We've been occupying ourselves with the Wii. My mom is playing tennis behind me. It's funny to hear her blame things on the remote. Sounds just like me.
Everyone is doing well.
Matthew is scheduled to have 7 teeth pulled on the 22nd. That should be fun too. At least Matt will have the week off. I imagine he will probably be the one to take Matthew in, because Zachy will still be out of commission.
Collin is wearing his contacts great. And with his new glasses to correct his astigmatism he is seeing 20/30. Can you believe it? It is so wonderful. He has never seen that well before. Yesterday, he looked up and said, "hey, an airplane"
Dill and Em are pretty uneventful. They just truck along, growing up way too fast.
I'll try hard to update after surgery, if not before then, but I can't make any promises.
Until then, peace be with you.

Wednesday, December 26, 2007

Grandpa

I've often wondered why the mean people live so long, and the good ones die young. Grandpa was one of the good ones. And he lived a good long life. He went downhill the last several years, and the last time we saw him, he was very frail. I have those images in my mind, but I'm going to remember the good times.
This was in 1994, when he drove all the way from southern California to eastern Washington, just to be at my high school graduation. He then turned around, a month later, to come to my wedding. In fact, he was the only extended member of my family to be at my graduation.



He did that a lot. And I totally took it for granted. He came when Matthew was born, and later in the year when Matthew was dedicated.
I just wish I hadn't taken it for granted.

This was at his 80th birthday party. When some people reach the cranky stage. Not him. He was there, lifting Matthew up to help him blow out his candles. I wish my kids knew him better. But as Dillon said, I can tell him the stories about watermelons, and make them his famous fried potatoes. I guess it will have to do.

Tuesday, December 25, 2007

Merry Christmas

It's been a great Christmas this year.
First of all, Collin is wearing his contacts all day. He really likes them, and can even take them out all by himself. I'm a bit concerned that someday he'll just decide to take them out for no good reason. But so far, one has come out every day and he takes it to Matt and says he needs it put back in. He has yet to let me put them in. Although, he did let Matt put some artificial tear drops in today, so I think we are definitely getting there.
We bought ourselves six flags season passes, and have been there twice so far. Both times we froze. We went Saturday night and it was so windy. Miserable, really. I can't wait to go when it is warmer.
We had made plans with some friends to take all the kids to see Alvin and the Chipmunks today, so decided we needed to do our big turkey dinner on Christmas Eve. We had those same friends over to eat and play games with us yesterday. It was so great. It makes life so much better to have good friends to share your time with. It also makes being far away from family much easier.
After they went home, we opened our family gifts. It was really great. We got mostly things we can do as a family. I love it. I made Matt a picture with all the kids' handprints on it. He had one from when we only had 3 kids, and always wanted me to add Zachy. So I made it with all five, finally.
My mom got us a new microwave. Microwaves older than 15 years can reset Zachy's pacemaker. Ours was questionable. We've had it 14 years, and have no idea if it was made 15 years ago or not. It's nice to just be safe. I don't know what to do with our old one though. It's in perfect condition, and seems silly to just donate to goodwill. Wish I knew someone who needed one.
Last night, Santa came to our house. And what did he bring? Why a Wii, of course. We are all so excited to have it! We love it. Great fun.
Today, we saw Alvin and the Chipmunks. It was cute. I've always been a fan of Theodore. So cute and cuddly. I think everyone in the city was there!
In all, it's been a really great Christmas.
But with happiness, always seems to come sadness.
Yesterday afternoon, my grandpa passed away. It was one of those things where it was good for him to die, but not for those of us who love him. He felt like he lived a good long life, and was really ready to go. But, we will miss him. Especially my dad. He didn't only lose his dad, but his best friend too. So if you could, would you just pray for him. He's really doing well. He knows it was time, but it's still hard to lose someone you love so much.
Also, I've been thinking all day, that now the holidays are over. Now Zachy's surgery will be here before we know it. And honestly, I don't want to go there. I have nothing to look forward to, to get my mind off it. I know we'll get through this, and everything will be ok. But there are always risks. And the future is not certain. And so, as a mommy, I worry. And...I pray. It's the only thing that gets me through.
OK, I've rambled far too long. I hope you all had a woderful Christmas.

Friday, December 21, 2007

Laundry Woes

As you can imagine, in a family of 7, there is a lot of laundry.
In our old house, I just did random laundry every day. I never sort, I just don't have the time.
Since we've moved, I've tried to change things up a bit.
I basically do laundry by room. This gives me 4 days of personal laundry, and 2 days to do sheets and other random laundry. I also do diapers twice a week.
It doesn't seem to be working out too well. I don't know why. Maybe because by the time I get to Collin and Zachy's room, they have a ton to do. And forget my room. That includes Emily's laundry, so that is an all day chore.
So my question is for those of you with large families. What is your routine like? What works for you? Is there a tried and true method that you would like to pass on to me. I'm up for anything to make this neverending chore a bit easier.

Thursday, December 20, 2007

Praise the Lord

Tonight, Collin finished his dinner and said, "ok, I'm ready, put my contacts in" And Matt did.
Hopefully, tomorrow we'll get them in earlier in the day!

I just want to cry

Collin refuses to let us put the contacts in. All day I've been fighting him. No amount of bribary is working.
He says he just wants to go to heaven now so that his eyes will work. *Sob*

Forgot to mention

I didn't get to mention earlier that Em is waving now. It is super cute. She also gives kisses. How is my baby so cute??

Finally, that update I promised you

I promised an update, so here it is.
Last week, I celebrated my 32nd birthday. I have no idea how I got so old. I don't feel 32, but I catch glimpses of myself in the mirror and think I look really old. I have been plucking white eyebrows lately. *sigh* Happens to the best of us, I suppose.
Also, Dillon had an orthodontist appointment last week. That went fine, but I asked the dr to look at Matthew's mouth and see if his permanent teeth were trying to come in like I was suspecting. Indeed, they are. He needs to have 9 teeth pulled. NINE! Poor thing. So we are waiting on the oral surgery place on base. They have to look at his records and decide if he is a case they can take right now. If not, we go on a waiting list. I hope they can just get in and get it done. One less thing to worry about!
Collin and Emily also had eye dr appointments last week. Em's eyes look great. Next spring, they'll dilate her again and check to be sure she isn't following Collin's pattern. We also discussed putting Collin in contacts.
His glasses make everything up close teeny tiny to him. So she said she'd refer him, and see what we could do.
We went yesterday. The dr told me he was really lukewarm about doing anything because his astigmatism was so bad. He said if anything were to work, it would be a really long road and definitely custom made lenses.
He started doing all his measurements and started saying, "now this is really unusual" I chuckled, because that is what we always hear regarding our kids. The astigmatism on the exterior and interior don't match. This did something that caused them to be able to take contacts right off the shelf, put them in his eyes and cause him to see. He can see so well with them. There is no astigmatism correction right now. In January we will go back and get glasses that will correct the astigmatism. However, when they were testing lenses, over the contacts, he actually saw better without the correction than with it. It's totally wild. And we know that it is a miracle. We went from his eyes being so bad that there really was no hope besides going to the institute for the blind to blow up all his school for him, to pulling a pair of contacts off the shelf right there. All night, I had tears in my eyes as he did things he'd never done before. It was so great.
Today, on the other hand, he refuses to let me put them in. I remember writing about him hating his glasses and wondering if he'd ever wear them. And now we can't get them off. I've said for awhile that as soon as he realizes they help, we'll have a hard time getting the contacts off. We just have to get to that point.
OK, Em is screaming at me, so my time is up. Pray that we get them in!!

Monday, December 17, 2007

Musical Monday

OK, Cory over at Roosmom is doing a musical monday meme these days.
Today's was to post your favorite soundtrack video.
So...here's mine! I LOVE LOVE LOVE Grease and Grease 2.

Friday, December 14, 2007

I need some time!!

I have lots to write about.
I had a birthday! And we went to a great party! And some kids had drs appointments.
And I want to write about all of it...but I just don't have the time.
Emily cut a tooth, and life was great..for a few days. Now, it's partner is trying to make it's entrance, and things are not so great.
I promise, dear readers, I will be back, soon, to tell you all about the week.

HEHE, it just occurred to me that y'all are going to think it's really exciting, and I assure you, it isn't. But alas, I'll update anyway!

Saturday, December 8, 2007

Moooooo

Back in high school, I bought the "It's a Cow Christmas" cassette tape.
How I loved that tape. Matt loved it too. We listened to it every year.
Then, at some point, we lost it. And we miss it!
You can't buy it anymore. This always happens with things I love. Take for instance the 80s game Dark Tower. My sister and I spent many hours playing that game when we were kids.
I decided one day that it would be great to introduce my kids to it. They don't make it either. In fact, it is now a huge collector's item, selling for over $300.
Lucky for my kids, my mom kept ours. So for Matthew's birthday, he received the game, and he loves it too.
I know my kids would love the cow christmas. Why can't I find it though? I could buy it on ebay for a chunk of change, but is it worth it? I just don't know.
I wish that the great things in life would just continue to be made for all time!

Thursday, December 6, 2007

OH! I forgot to tell y'all!!

I ordered Matt and me Phantom of the Opera tickets yesterday!
The traveling show will be here in February and March.
I am SO SO SO excited!!!

Clearing something up, and some funnies

Some of you have asked me about Zachy's surgery and how it will be done.
If all goes according to plan, this will NOT be through the breastbone.
They will make a little incision by the pectoral muscle and put the generator under the muscle. Then they will thread the leads in through his veins.
The catch here is that there, apparently, is no such thing as a "pediatric" pacemaker. So we are dealing with adult size leads. And 4 year old size veins. The card seems to think that Z's veins are big and wide open, but they won't know until they get in there if they are big enough.
But, as of right now, the plan is to NOT open his chest, just a small pocket area.

~~~~~~~
When I call my mom, her husband will sometimes answer. It goes like this.
"Dave K____"
"Dave K____, is Cathy K_____ there?"
I say that everytime he answers like.
Collin has been walking around today saying,
"Dave K____ is Cavity K____ there?"
So cute.

~~~~~~~
Zachy always says, "mommy, can you help me?" then does whatever it is he needed help with and says, "nebermind" I know this is common, but it sound so stinking cute coming out of his mouth.

~~~~~~~

I thought I had more funny things to tell you, but I guess not. Hope you're having a great week.

Monday, December 3, 2007

God is so good

I don't believe in coincidences. I believe God is in control of all things.
Today, I was getting ready to make some stuffing for Emily.
She, of course, crawled in the kitchen after me, and started pulling on my legs.
Now, I really didn't want to pick her up. I really wanted to get water on the stove to boil. I just needed to get the measuring cup and put it on..real quick.
But instead, I picked her up.
I then, opened the cupboard above the stove to get the measuring cup out. A big, glass, measuring cup.
The cookbooks on the other side and fallen down, pushing the measuring cups over. When I opened the cupboard, the cups came falling down, shattering into a million pieces...right where Emily had been sitting.
Instead, of being covered in glass, she was safe in my arms.
Thank you, God, for always looking out for even the smallest of us.

It's set

January 16, 2008..Zach will get his pacemaker.
It was awful to have that be the first thing I had to write in my new calendar, so I had to quickly write in some birthdays!
We're trying hard not to talk about it that much, because after all, we are dealing with a child here, not a pacemaker. But the other day we said something about God loving Zach, and he said, "yes, and he gave me a special heart, JUST ME" And he found all his doctor stuff and has been walking around with the stethoscope around his neck, wearing latex gloves, saying, "can I please fix your heart?" So yeah...he knows something is up.
BUT..for now..tis the season to count our blessings.
And we are so very blessed.
Zach, for all intents and purposes, is really really healthy. As are the rest of the kids. They are all such a joy.
Emily continues to be very high needs though. Not that this is bad. I do know it will pass, but golly...it's rough. Her upper right front tooth is finally starting to poke through. It has been so swollen lately, and I'm hoping it will make for a happier girl. We'll see. I think it's wishful thinking, but I will wish anyway.
As usual, she is pulling on my legs, and my time is up. Someday, I'll post and not be interrupted by a crab apple crying or pulling on me!

Friday, November 30, 2007

How to make him understand?

I'm really struggling with this right now. How do we help Zach understand why he will need surgery? How do we help him understand why he will be able to feel something inside his body?
We've told him a million times that God gave him a special heart, but that doesn't help when it comes to pain.
To him, he seems fine. He isn't sick, or hurting, or anything like that. Just tired. But that doesn't seem to bother him too much!
I just don't know. He's going to hurt. And he's not going to understand why. That's the worst part.
Funny thing, after he was done with the holter monitor, he looked at me and said, "Collin can wear the stickers next time" He was mad that they hurt coming off and wasn't going to do it again...Collin could. So funny.
Yes, I know the answer is that he won't understand. But still...I wish he could.

Thursday, November 29, 2007

Lonely ol blog

I feel the need to write, only I don't know what to write about.
While unpacking boxes, I came across all my old journal entries. All of them since 2001. And I started reading.
I have grown so much in these last 7 years, changed so much, and yet, I'm still little ol me. But, I actually had something to say back then. Now, I struggle to find anything to fill this blog with. Partly, I'm a bit worried about who will find me. But I'm not going to let that run my life.
I just really feel as if I have nothing to say. So, I bore you with rambly boring posts. Lucky you!
Last night, I went to a Mended Little Hearts meeting. Thanks Maria, for telling me about it. It really is so great. I want to be part of this group so much. The problem is, they meet on Wednesday nights. Just once a month. But still, I'm committed to Adventurers. I'm the director, after all. It's really perplexing me. How might I be able to make it work. They do great things like hospital visitation. That's something I'd love to get in on. When Zach was born, logically, we knew we weren't alone, but there was no one around. No one ever came to sit with us and say, "We've been here...we know how you feel...it will be alright" In fact, it wasn't until we moved here that we met other heart parents. So, yeah, it's something I'd really like to do. Because it's lonely. And scary.
I'm waiting on the scheduling lady to call me back to schedule Zach's pacemaker surgery. We're doing it in January. Too soon for me. But, I know he'll be ok. God will take care of him. He always does.
Emily continues to be congested. The people who lived here before didn't have animals, so now I'm totally stumped. Because we live closer to the army post now, we've asked to change their pediatrician to one on post. Maybe the change will bring some answers with it. We'll see. For now, she is super needy, and super fussy.
And, she's now awake, so my moment of peace is over.

Tuesday, November 27, 2007

Holter results

We talked with the electrophysiologist yesterday. That's a big fancy word for cardiologist who specializes in pacemakers.
The results of the holter were good. Apparently, when the heart starts to slow down, it will start having spurts of rapid rates (tachycardia) in with the slow rates(bradycardia). Thankfully, Zachy hasn't gotten the tachy...yet. Once that happens, they say it is much harder to correct with a pacemaker.
So we are at a good point to pace. His heart, on average, beats 20 beats slower than it should. With it dropping into the 30s while he sleeps. He also has junctional rhthym. Both of these are pretty easily correctable with a pacemaker.
At this point, we have been given the option of pacing now or waiting. He will have to be paced soon anyway, and if we wait, we run the risk of waiting too long. Right now, his heart is swollen. We can correct that with a normal rhythm, but again, if we wait too long, it won't go back to it's correct size.
So, really, while we have the option to wait, it is best to proceed with the pacemaker.
We are looking at the second half of January. The kids are all in gymnastics, and we want him to finish out this session, which ends the 19th of January. He loves it so much, we can't bear to keep him from it.
As for me..I'm kind of having a hard time. It was one thing to talk about it before the holter. I think I was hoping they'd say it all looked great, no need to pace. But no such luck. Now it's real. And it's hard.
Logically, I know he'll be fine. But still...he's my baby. And there's always a risk. And it's scary!
I have faith that God will take care of him, and that's all I need. I just need to push any negatives out of my head.

Saturday, November 17, 2007

That was quick

We are back up and running! Woohoo!!
This has been the best move ever.
First, we love our new house. And are actually sad that we are just renting it for two years!
Second, if you ever have the chance to have movers come and pack you up and move you, I recommend it highly. This is the way to go. Pack in one day, move in the next.
We are settling in nicely. I almost have the kitchen unpacked, which always seems to be the hardest for me. It's tough trying to find a place for everything. I actually have plenty of room for all our "stuff" at this house. I was worried that the kitchen was a bit small, but in reality, it's big enough.
Matt is off for thanksgiving and Friday this week, so we will have a good long weekend to, hopefully, finish up.
Tomorrow, we have to go to our old house and clean it up for our final inspection on Monday morning. I'll tell ya, I could do without this part. Next time, I think we may hire cleaners.
So that's us right now..unpacking in a great new house.
Oh and great news...the family behind us has 6 kids and they homeschool. How cool is that??
Alrighty, I'm off to bed. Nighty night.

Monday, November 12, 2007

Ta Ta For Now

I just restarted this blog, now I'm leaving it! At least I warned you!
The packers come tomorrow to pack us all up. That includes the computer because we're stuck in the stone ages and don't have a laptop.
We are set to get internet service started on Friday, but who knows when we'll get to the computer. Soon, rather than later, I'm sure.
In the meantime, please say a little prayer for Z.
He wears his holter monitor tomorrow. We are hoping that it won't show anything unexpected and that we can wait on the pacemaker until after the holidays. Of course, my mom thinks the drs need to come up with a better answer than a pacemaker! I wish.
Alrighty dear readers, I'll see you on the flip side! Have a wonderful week.

Tuesday, November 6, 2007

I'M BACK!

As some of you know, my last blog is now gone.
This is due to some unfortunate circumstances that took place in real life. In an effort to be a bit hard to find I have renamed my blog and moved. Hopefully, it works!
Since we last "spoke" so much has happened.
First, we got news that we have to move. They are taking over our buildings and sending us to civilian housing. This is actually great, it was just really short notice and at a very stressful time in our lives. But, we will get through it. We move next week. This may the first post and last for awhile during the move. Hopefully not!
In other major news, we found out that Z needs to get a pacemaker. His heart is swelling. It's a huge bummer. Last year we were told that his heart was looking great. Now, not so much.
Thankfully, it isn't urgent, so we get to have the holidays and then in January or February he'll be getting paced.
There is so much going on, and yet I can't get it out. I've just spent a good long while setting this blog up, and now I'm tired, but alas, I'm back.
Hope you didn't miss me too bad!!

Saturday, September 29, 2007

WE MADE IT!

After seven long weeks, Matt is back where he belongs. Right here at home.
Zachy said to him tonight, "Daddy, can you please stay with us?" It was so cute. They are so happy to have him home. Me too.
I totally admire single moms. This last 7 weeks was truly one of the hardest things I've ever done.
I assumed that since I got through him working while going to school, that it would be pie. Oh my, it so wasn't. It was so very, very hard.
But..I survived. As my neighbor said (her hubby came home from Iraq today, hooray!) it makes you realize just how strong you are.
Indeed.
And now I'm ready to crash.
I think we're going to six flags tomorrow, so no rest for us!
I'm so happy to have him home. :-)

Wednesday, September 19, 2007

Museum Fun

Took the kids to the museum yesterday. It was really fun!




Sunday, September 16, 2007

The inevitable problem with blogging

I've seen it happen at so many blogs.
It's happened here.
People think that, because they read your blog, they know all there is to know about you.
You may think that there couldn't possibly be more to my life than what I write. The reality is, you are granted a tiny glimpse into my life. That doesn't mean you know me.
Even our far away family will tell you that they don't really know us anymore, now that they don't have regular contact with us. They don't know what our kids are into, they don't know what Matt and I enjoy doing, what shows we watch, etc. That comes from a personal, daily relationship with a person.
Therefore, for a reader to have any kind of strong opinion about me and my family, is crazy.
You may think you know what is best for my kids. But you don't even know my kids. Meeting them once or twice, if at all, is far from knowing them.
I think it is so easy to get sucked into that trap of thinking I'm telling you every detail of our lives. That I'm telling you every quirk the kids have, every personality trait. But no. You really don't know much.
Please, try to refrain from judging me, based on what you read here. Based on what you think would surely be best for my family.
The bottom line is this...God gave our kids to Matt and me. He didn't give them to you. He is guiding us in bringing them up. Please, don't question what we do with them. Rest assured that we pray daily about how we bring them up, and feel very guided to do the things we do.
Thank you for taking this post into consideration before you email me, or spout off to someone else about us.

Tuesday, September 4, 2007

Big Heavy Sigh

It's one of those nights.
A big, heavy sigh kind of night.
I'm missing Matt fiercely.
Yes, I have 5 kids to keep me busy. But that doesn't mean I'm not longing for Matt to be home.
Three weeks down. Four to go. Seems like an eternity.

Sunday, September 2, 2007

Pictures

I can't even begin to tell you how much I love these kids.
I have been blessed far more than I deserve.

Just a little posty post

Just to say that all is well here.
We are finishing week three without Matt. Four more to go.
We had major van issues on Tuesday, that I'm proud to say we came through with flying colors. But it would have been MUCH easier with Matt around.
The kids started school this last week and my oh my are we busy.
They also started gymnastics last week. They all love it.
In general, we've just been really busy with life.
I, for the life of me, cannot figure out how mom's with loads of kids are able to update their blogs often. I'm struggling to find a minute or two to myself. And to put pictures up? Oh my.
Emmie is 6 months old tomorrow. How in the world did that happen? When my mom left she said, "see you when you're walking" and I laughed and said, "don't say that, that can't be true" But alas, it's already been 6 months since they were here. And 2 months since my inlaws were here. Time's a flyin! So, unless my mom gets her tookus out here soon, Emmie may well be walking when she sees here next.
We have a birthday party to go to this afternoon, so I'm off!
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