Tuesday, October 11, 2011

Surgery, Fall, and Dillon...what a combination!

I've been sitting here, trying to figure out what to write..but I can't come up with anything meaningful.
It seems like I'm always just updating on the health of my kids.  My mom told me the other day that she thought going to endless doctor appointments would get old.  I don't know, it's been my life for the last 15 years, it's all I know, it's just life.
But it makes me think maybe it gets old reading about it. 
The only thing I'll say right now is, Matthew's surgery went well, his pressure is, once again, down, and now we just wait again.  Do I think it will work this time?  Not really.  It hasn't in the past.  The doctor said she didn't blame me for being pessimistic about it, she said given his history, it's natural for me to be pessimistic.  I hate feeling that way.  I wish I could just say, "oh yeah, this will be it..it will be great".  I've said that in the past, only to be let down, time and again.  Once bitten, twice shy, and all that.
Fall has come to Ohio.  It is so beautiful.  I find myself wondering if the native Ohioans (is that what they're called?) realize how lucky they are.  There are many places in this country that do not look like this in the fall.  I've lived in plenty of those places.  Anyway, I just love it.  Of course, the leaves are falling faster than we can keep them raked up, and that's not too fun, but it can't all be roses, now can it?
Tomorrow, Dillon turns 13!!  How can this be?? Two teenagers in the house!  Weren't they just born?  They are growing way too fast for me.  I wish time could just slow down a wee bit.  I know I'll blink and they'll be gone, and yet, I am so thankful to have all this time with them.  I know too many people who have lost their children, so I'm not taking a minute for granted.
Well lookie there, I guess I did have something to say. 

Saturday, October 1, 2011

What a week!

For the last two weeks, Matt has been TDY.  Last week he was in Rhode Island, this week he was in San Antonio.  I so wish we could have made the San Antonio trip with him, but alas, we were all home while he was enjoying our old family and friends!  Maybe next time!
Last week was pretty uneventful, in fact, I can't really remember what we did.
Oh yes, we started school!  It went really well, for a first week.  Still working out some issues, but this happens every year.  I think we're off to a great start!
This week though, it was another story!
We had appointments all week long.  Good to get them all out of the way at once though, I always say!
Matthew is having surgery on Tuesday, so Monday he had his pre-op appointment.  All went well and he was cleared for surgery.
Tuesday, he went to the dentist and had no cavities.  I was trying to remember, and I don't think he has ever had any cavities.  Not bad for a 15 year old!
Wednesday was the exciting day!
It started early with a radio interview!  Myself and two other moms were asked to be the guests on a radio show.  Our half hour show was about mended little hearts and CHD in general.  We were all nervous, but it was so great to get our stories out there.  We only have 70 some families in our group, and with CHD affecting 1 in 100 children, we know that's just the tip of the iceberg.
Dillon is so funny, because he is convinced this will make me famous!  HAHA!! 
I know it airs in October sometime, but I don't think I can listen to it.  I'd pick apart everything I said!
From there we had to rush to the cardiologist for Zachy and Natalie's check ups.  I didn't really think Natalie would cooperate, since she hasn't ever since her RSV.  She managed to make it through the EKG, but that was it.  The doctor tried to echo her, but she wouldn't have it.  She has a questionable pulmonary vein that we need to keep an eye on, but the doc feels comfortable just retrying in six months.  At that point, if she doesn't cooperate, we'll have to do a sedated echo.  The good news, regarding her, is her rhythm looks great!  By now Zachy's was a mess, so things are looking promising as far as her not needing a pacemaker.
Zachy did great, and for the first time since being paced four years ago, has graduated to appointments once a year!  Go Zachy!!
Thursday, Natalie was supposed to follow up with pulmonology, but she and Emily woke up with high fevers.  Emily was vomiting as well.  Poor girls, they were miserable.  No pulmonology for Natalie! 
Friday was spent relaxing and trying to get well!
Matt gets home late tonight, and I am so looking forward to having him here!  I hate when he is away.  We miss him so much.  Emily woke up this morning and the first thing she said was, "today is the day we get Daddy!  YAY!!"

This coming week will be much calmer, I hope!
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