Sunday, June 10, 2007

I feel like I'm running on one brain cell

OK, so a few people have emailed me and asked me to update.
I realize it's been a long time, I just have a lot happening right now.
First and foremost is Emily.
What is wrong with my precious baby?
As you all know, she has been very congested, for...oh..ever.
The last time I posted, I said that she had her upper GI and did not have reflux. Well, the dr called me to tell me these results. I was so upset. I said, "then tell my why she is so congested and wheezing so badly!" He said he didn't know, but he could tell I wanted her to be seen again, and since it was going to be memorial day weekend, I could bring her in on Friday.
I was all prepared for this meeting. I took video of her breathing so he could see that she was really retracting and trying hard to breathe. It wasn't needed. When the nurse called us back, she freaked. She pulled the dr out of the room he was in and said he had to look at her NOW. They immediately started a breathing treatment. After two treatments, she was still wheezing, but not so bad that she needed to stay there. He told me at that point that the upper GI had said she didn't have reflux, but based on what I had said and her symptoms, he was going to treat her anyway. So we left with meds and a new nebulizer to treat her every 4 hours.
Over the weekend her cying escalated. There was no consoling her. It was awful.
On Tuesday when we went back in, the dr hung his face in his hands and said, "something is wrong with your baby, and I don't know what" He then told me she would be sent to a pulmunologist and gastroenterologist. Finally, we'd be getting somewhere.
That Saturday, we got a letter in the mail announcing the drs retirement, stating he'd be seeing no more patients.
Now, I had been fed up with him because this has been going on so long and he really hasn't helped much. In fact, I was ready to find a new dr after this ordeal was over. This put us in a pinch.
I decided to make the specialist appointments and work on switching her provider. Little did I know that that would be impossible. The gastro dr is booking in March! March folks. She'll be a year old. The pulmunologist can't see her till the end of July.
Thankfully, I was able to call Tricare and tell them what is going on. They got her a PCM immediately, and she has an appointment on Monday. I didn't like our former military dr experiences, so I'm praying it goes better this time.
She is still on breathing treatments daily, and still wheezes and is horribly congested.
Through all of this, she tries very hard to be a happy baby. She smiles and I just know a laugh is in there somewhere.
Dillon and Collin had their ending program for adventurers last Saturday. Dillon got Adventurer of the year. We were pretty proud of him!!
Last Sunday, we took Dillon to camp. He was there for the week. I missed him terribly. He had a great time.
We picked him up today and dropped Matthew off for his week. He is totally excited because he gets to do waterskiing this year. Fun times.
Last week I spent dejunking the kid rooms. Everything is nice and in place now. We'll see how long that lasts.
Also, on Thursday, Collin lost his first tooth!
This week my in laws are coming to visit. We are very excited about it, and plan to do lots of fun stuff with them.
In our free time, we are busy working on VBS. It is going to be a huge success this year. We are holding it the last week in June.
I'll be so glad when July hits. No plans, so far. It will be nice to stop being so hectic!
So there you have it, a big long entry from asked for it!!


Julia said...

I feel so bad for your little one! I hope you get some answers and fast. I will be praying for her that she gets better.

Robin said...

I am so sorry you're having so many doctor problems. It's really horrible and I can't believe what they can get away with, but they do. I love the pics!

Debbie said...

I'm sorry they still don't knwo what wrongs. The poor thing!! I'm glad the boys are having fun. The pictures are adorable!!

Paulette said...

My prayers are with you and your very special family, especially for miss Emily. I really hope they figure out and can successfully treat whatever it is that is making her so uncomfortable.

Maria said...

wow, sorry to hear all the horrible things going on with ms emily!! i hope that they find an answer ASAP!!! take care...

Crayonsetc said...

Hey lady, I am keeping you in my prayers.

I have an idea, Does her forehead taste salty when you kiss her???

GinaBeana said...

Oh my goodness - Em is SO stinking adorable! She looks so cute in her little Aunt Jemima outfit! And, can I just say that in the pic of Zachy, Sadie looks possesed! She looks like she is going to run down the hall and Attack! *lol* Too funny! And how did Collin do once the tooth came out?

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