Sunday, May 13, 2012

Big, Long, Medical update

I can't believe I haven't posted since sweet, sweet Griffin was born.
OK, yes I can.  My computer battery doesn't charge anymore, so I'm rarely on my computer, because I hate being tethered to the wall.
That and life has just been, well, crazy.
I wanted to hop on though, and just give a general, medical update.
Firstly, Griffin is great.  They echoed him when he was first born, and he had two small issues, but he was less than 24 hours old, and most babies have these issues and they resolve themselves.  He will be echoed again at six months.  He has reflux, but is being treated for that.  He's such a wonderful little chunk!  At two months, he's 15 pounds.   I love his roly poly legs!  Everyone just loves having him here and they all want to hold him...for about two minutes, then they say he's too heavy! HAHA!!
Next, since we last spoke, Natalie and Zachary saw the cardiologist.  They both got good reports and go back in a year!  This is the first time, since Zachy was paced, that he gets to go a year in between visits.  Yay!!
Natalie is still being followed by pulmonology and is doing well.  We have been slacking with her breathing treatments, but she isn't having any issues, and we suspect soon, they will clear her from their team.  She still isn't growing.  She had gained a pound, and then at her last appointment, she had lost half that pound.  She is growing taller, just not gaining any weight.  She doesn't look unhealthy, just small.
Matthew was seen by the craniofacial team in Cincinnati on Friday.  That was a total joke.  The plastic surgeon was pretty much a jerk and said anyone who said anything more could be done for Matthew's nose, was lying to us, and there was nothing else they could do.  He left the room, and I told Matthew that was an unacceptable answer, and that I would search and find a doctor willing to help.  We did this when he was baby, doctor after doctor said they couldn't help, but we finally found one who could...I won't quit looking until we find someone again.
Dillon is normally left out of these posts, but he gets to be in this one!  A few days ago, he managed to run into an empty 10 gallon aquarium with a bare foot.  He sliced his toe up and cut his foot all up.  He ended up with 9 stitches in hiss big toe, steri strips on cuts on the bottom of his foot, and glue on a cut on the top of his foot.  He is doing well, though.
I have nothing medical to say about Collin this time!  He's doing great!
Lastly, Emily.  When I last talked about her diabetes, I was really struggling with it, emotionally.  I'm past that.  I realized that I am no longer angry when someone talks to me about it. I guess it's acceptance.  Acceptance that this is forever.  The highs.  The lows.  Nothing we can do except correct them and move on. She goes for her first 3 month appointment in a week.  That should be interesting.  The exciting news about Emily, is that we have decided to pursue the journey of a diabetes alert dog (DAD) for her.  She can't feel her lows, there have been too many times when she can't stand up because she is so low, but she says she feels fine.  She may be able to feel them, but she is too young to express to us what she is feeling.  We are so incredibly excited about this, and all that it will mean for her.  She won't be restricted due to her diabetes.  I will have extra eyes.  We are so crazy busy in our life that I can't always have my eyes on her, but her DAD will, and he/she will tell me if something is going on with her sugar that I need to know about.  These dogs are very expensive, so we will be fundraising like crazy, but it will so worth it.  I'll be keeping everyone updated on our fundraising progress!
Ok, that's it!  Hopefully, next update won't all be medical!
Oh, and happy mother's day to all the moms out there!
* I wanted to add pictures, but blogger has changed, and it looks like a pain right now, and my kids are sitting here wanting me to open my mother's day present!  Pictures next time!

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