Thursday, June 15, 2006

One in one hundred...strikes again

One in one hundred. That is how many tiny babies are affected by congenital heart defects (CHD). It is the number one killer of children. And yet, there is so little knowledge of them.
I'd like to take this time to remind you that I will be walking in the heart walk this year, and if you would like to donate to this cause, please click on that logo up there and do so.
We got news on Tuesday that some very old family friends had lost their baby to CHD. Baby was due in August, but passed away on Sunday, and was delivered Monday. His poor little heart was just too defective to sustain life. He had a condition that was so rare it doesn't have a name, and the drs only knew of one other case, in Boston.
My heart is absolutely breaking for them. We've known the daddy forever. Since he was just a boy. I have silly pictures of him from when we used to live next door, and he was just a kid. To think that now he is going through the most horrific thing ever, it just kills me.
I spoke with baby's grandma today, and I just wish I were there to wrap my arms around them and let them cry and cry. It's terrible.
Then later on Tuesday, Zachy's speech therapist came to see Zach, and she was distraught, because her best friend just found out that her baby only has a 3 chamber heart. *sigh* It never ends.
Am I just more aware of these things now? I don't know. I have to say, I wish the world of CHD was not mine, but it is, and always will be. I praise the good Lord that he decided to allow Zachy to be with us, I can't imagine the pain of not having him here. We are so completely blessed.
So again, if you feel the desire to help raise money for the American Heart Association, just click that logo up there, it really is very simple to donate. And while you're at it, please say a prayer for these two families, that they will get through all of this the best way they know how.


Mama Gina said...

:( I'm so sorry for the family. :(

Anonymous said...

who was it? Did I know them?

Crayonsetc said...

Oh wow... that is so hard. I will keep them in my prayers.

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